The Kidney and Cardiovascular Health of Young Adults Born Prematurely: Insights from the HAPI Study I am always impressed by the resilience of premature babies who grow up to become active and healthy young adults. But what about their long-term health? This is an important question, and it is precisely what the HAPI study (Health […]
Neurodevelopmental Impairment : Who Defines It? Neurodevelopmental impairment (NDI) is a key neonatal outcome measure- often the primary outcome. It is frequently included in composite outcomes such as “death or NDI,” which raises significant ethical and scientific concerns. Why Use NDI as a Primary Outcome is Problematic NDI itself is a composite measure, encompassing: This
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Giving a Voice to Parents in Neonatology: Why Their Perspective is Essential When a baby is born prematurely, their parents’ world is turned upside down. They find themselves in a highly specialized medical environment where every heartbeat and breath is closely monitored. But a fundamental question arises: how can we truly assess the well-being and
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NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families The Neonatal Intensive Care Unit (NICU) is a special place with its own language and culture. For doctors and nurses, it’s a place where they pay close attention to every little detail and try to stay hopeful. But for parents, it
Parental perspectives after very preterm birth: Seeing the good, not just the bad The study aimed to understand how parents see the health and development of their extremely preterm baby (born at less then 29 weeks gestation): their concerns and what they considered positive. We compared this with their babies level of neurodevelopmental impairment (NDI).
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Whole genome sequencing in neonatology: what is it’s value? Rapid whole genome sequencing and whole exome sequencing, also known as “next generation sequencing” (NGS), are increasingly recommended as the first test to diagnose infants suspected of having single gene disorders. However, the effectiveness of NGS in diagnosing or managing these conditions varies widely depending on
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Parental evaluate the health of their children and give their perspective on important health outcomes after extremely preterm infants This study looked at how parents of premature babies feel about their children’s health and development. We asked parents of children born extremely preterm (less than 29 weeks of gestational age) to rate their child’s health
The Dilemmas of Artificial Wombs: Conventional Ethics and Science Fiction Five years ago, incredible experiments were conducted on animals to develop Artificial Womb Technology (AWT) at the Children’s Hospital of Philadelphia (CHOP). This technology made us ponder on the ethical aspects for premature babies. However, AWT raises questions that go beyond the Neonatal Intensive Care
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Family Integrated Care: Clinicians and Families’ perspectives This is an article written on behalf of our PAF (partenariat famille) team. “The philosophy of care in Neonatal Intensive care Units (NICU) has changed with increasing integration of families. We examined parents’ and clinicians’ perspective about Family Integrated Care (FiCare) in our quaternary NICU. We found that
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