articles and research

How Do Parents Perceive Their Child’s Future Quality of Life? The Role of Resilience in Long-Term Adaptation Predicting the Future Is Never Simple In neonatology and complex pediatric care, conversations often turn toward future quality of life. Clinicians discuss medical risks: A Well-Documented Gap Between Clinicians and Families Multiple studies show a consistent pattern: Healthcare […]

Parent Mentors in Neonatology: When Experience Becomes Support How parent mentors in neonatology improve support, communication, and family-centered care in the NICU. When Lived Experience Becomes Expertise The neonatal intensive care unit (NICU) is an intense environment.For parents, it is often marked by uncertainty, fear, and the need to quickly adapt to complex medical language

Gestational Age and Delivery Room Management: Insights from the EPIPAGE-2 Study How gestational age influences delivery room management of extremely preterm infants. Insights from the French EPIPAGE-2 population study. How Much Does One Week Matter? In neonatal medicine, gestational age plays a central role in delivery room decision-making for extremely preterm infants. The EPIPAGE-2 study

Measuring What Truly Matters to Families in Neonatal Care Traditionally, neonatal follow‑up programs have focused on a single type of outcome : neurodevelopmental impairment.While these clinical data are important, they don’t tell the whole story. In our article Measuring family‑important outcomes in large neonatal networks, Catherine Demers we describe what families themselves consider meaningful and what

Reflections on the Evolution of Perinatal Deaths Outside Neonatal Intensive Care Units (NICUs) Aim: Perinatal deaths occurring outside the neonatal intensive care unit (NICU) are rarely recorded in outcome studies, despite having a direct impact on perinatal statistics. Indeed, when we speak about survival at 23 weeks of gestational age, or for babies with a certain