articles and research

Better Communication with Parents at the End of Life: Concrete Actions for Optimal Support

Better Communication with Parents at the End of Life: Concrete Actions for Optimal Support Pediatric clinicians are urged, when communicating with parents during end-of-life care situations, to be empathetic, warm, and compassionate. These recommendations generally do not include practical suggestions and have little evidence that parents value specific communication techniques. We conducted a study published […]

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voix des parents

Giving a Voice to Parents in Neonatology: Why Their Perspective is Essential

Giving a Voice to Parents in Neonatology: Why Their Perspective is Essential When a baby is born prematurely, their parents’ world is turned upside down. They find themselves in a highly specialized medical environment where every heartbeat and breath is closely monitored. But a fundamental question arises: how can we truly assess the well-being and

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Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes

Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes Parents’ Voices: Transforming Neonatal Research Through Collaboration Premature birth is a life-altering experience for families, and the uncertainty surrounding the health outcomes of these children can be overwhelming. Projects like Parents’ Voices are making a difference by integrating parental concerns into neonatal research.

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Personalized communication with parents of children born at less than 25 weeks: Moving from doctor-driven to parent-personalized discussions 

Personalized communication with parents of children born at less than 25 weeks: Moving from doctor-driven to parent-personalized discussions  Communicating with parents facing potential preterm birth is complex, especially when the baby may be born before 25 weeks of gestational age. These babies have a high chance of dying or having serious health problems. Many of

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NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families

NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families  The Neonatal Intensive Care Unit (NICU) is a special place with its own language and culture. For doctors and nurses, it’s a place where they pay close attention to every little detail and try to stay hopeful. But for parents, it

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Parental perspectives after very preterm birth: Seeing the good, not just the bad 

Parental perspectives after very preterm birth: Seeing the good, not just the bad  The study aimed to understand how parents see the health and development of their extremely preterm baby (born at less then 29 weeks gestation): their concerns and what they considered positive. We compared this with their babies level of neurodevelopmental impairment (NDI).

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