Parental evaluate the health of their children and give their perspective on important health outcomes after extremely preterm infants This study looked at how parents of premature babies feel about their children’s health and development. We asked parents of children born extremely preterm (less than 29 weeks of gestational age) to rate their child’s health
This article, authored by Marie Chevalier (a former fellow of our unit) with Thuy Mai Luu (in neonatal care), Paige Church (a rehabilitation and neonatal care physician), Annie Janvier, and Keith Barrington, reviews the medical literature regarding the outcomes of preterm infants with significant cerebral bleeding and the variations in practices among different teams or countries.
Our new “voice of parents” article is out where we asked stakeholders what they considered to be a severe outcome: they do not agree with our classification and consider disabilities with less pessimism than physicians/researchers.
Congratulations to our whole “voice of parent’s” family. Our last article the impact of prematurity on parents. They describe both positive and negative outcomes (while in the traditional medical literature only negative outcomes are described). The positive impacts reported included: an improved outlook on life, such as gratitude and perspective, stronger family relationships and the gift of the child.
Congratulations to Béatrice for her new article about the long term outcomes of babies who survive after life-and-death discussions and decisions.
Gratitude, fragility and strength: Perspectives of adults born preterm about prematurity Congratulations to Camille, an amazing researcher (and person) who adds another article to her collection of HAPI papers (Health of Adults born Preterm Investigation). Adults born preterm evaluated their health in a balanced fashion. Preterm-born adults often feel that they have experienced positive transformations as
Gratitude, fragility and strength: Perspectives of adults born preterm about prematurity Read More »
Family Integrated Care: Clinicians and Families’ perspectives This is an article written on behalf of our PAF (partenariat famille) team. “The philosophy of care in Neonatal Intensive care Units (NICU) has changed with increasing integration of families. We examined parents’ and clinicians’ perspective about Family Integrated Care (FiCare) in our quaternary NICU. We found that
Family Integrated Care: Clinicians and Families’ perspectives Read More »
Presentation of my book : Breathe, Baby, Breathe! My name is Annie Janvier, I am a neonatologist, a baby doctor, but also the mom of 3 children, one of whom was born preterm at 24 weeks gestation. My book ” Breathe, Baby, Breathe ! ” asks this simple question : How can I be a
Presentation of my book : Breathe, Baby, Breathe! Read More »
Parenting in the NICU is an intense journey. Parents struggle to build intimacy with their child amid complex emotions and medical uncertainties. They need to rapidly adapt their vision of parenthood to the realities of intensive care.
Helping Parents Cope in the NICU Read More »
To develop a Neonatal Intervention Score (NIS) to describe the clinical trajectory of a neonate throughout their neonatal intensive care unit (NICU) admission.
