Our new “voice of parents” article is out where we asked stakeholders what they considered to be a severe outcome: they do not agree with our classification and consider disabilities with less pessimism than physicians/researchers.
Congratulations to our whole “voice of parent’s” family. Our last article the impact of prematurity on parents. They describe both positive and negative outcomes (while in the traditional medical literature only negative outcomes are described). The positive impacts reported included: an improved outlook on life, such as gratitude and perspective, stronger family relationships and the gift of the child.
Congratulations to Béatrice for her new article about the long term outcomes of babies who survive after life-and-death discussions and decisions.
Gratitude, fragility and strength: Perspectives of adults born preterm about prematurity Congratulations to Camille, an amazing researcher (and person) who adds another article to her collection of HAPI papers (Health of Adults born Preterm Investigation). Adults born preterm evaluated their health in a balanced fashion. Preterm-born adults often feel that they have experienced positive transformations as
Gratitude, fragility and strength: Perspectives of adults born preterm about prematurity Read More »
Family Integrated Care: Clinicians and Families’ perspectives This is an article written on behalf of our PAF (partenariat famille) team. “The philosophy of care in Neonatal Intensive care Units (NICU) has changed with increasing integration of families. We examined parents’ and clinicians’ perspective about Family Integrated Care (FiCare) in our quaternary NICU. We found that
Family Integrated Care: Clinicians and Families’ perspectives Read More »
Presentation of my book : Breathe, Baby, Breathe! My name is Annie Janvier, I am a neonatologist, a baby doctor, but also the mom of 3 children, one of whom was born preterm at 24 weeks gestation. My book ” Breathe, Baby, Breathe ! ” asks this simple question : How can I be a
Presentation of my book : Breathe, Baby, Breathe! Read More »
Parenting in the NICU is an intense journey. Parents struggle to build intimacy with their child amid complex emotions and medical uncertainties. They need to rapidly adapt their vision of parenthood to the realities of intensive care.
Helping Parents Cope in the NICU Read More »
To develop a Neonatal Intervention Score (NIS) to describe the clinical trajectory of a neonate throughout their neonatal intensive care unit (NICU) admission.
To explore clinical experiences, perspectives and perceptions of moral distress in neonatology.
Always a burden? Healthcare providers’ perspectives on moral distress Read More »
The neonatal intensive care unit is recognized as a stressful environment; the nature of caring for sick babies with uncertain outcomes and the need to make difficult decisions results in a work place where moral distress is prevalent. According to the prevailing definition, moral distress occurs when the provider believes that what is “done” is not the right course of action, with an element of constraint: the provider has no choice but to act this way.
The use and misuse of moral distress in neonatology Read More »
