The Kidney and Cardiovascular Health of Young Adults Born Prematurely: Insights from the HAPI Study I am always impressed by the resilience of premature babies who grow up to become active and healthy young adults. But what about their long-term health? This is an important question, and it is precisely what the HAPI study (Health […]
Better Communication with Parents at the End of Life: Concrete Actions for Optimal Support Pediatric clinicians are urged, when communicating with parents during end-of-life care situations, to be empathetic, warm, and compassionate. These recommendations generally do not include practical suggestions and have little evidence that parents value specific communication techniques. We conducted a study published
Neurodevelopmental Impairment : Who Defines It? Neurodevelopmental impairment (NDI) is a key neonatal outcome measure- often the primary outcome. It is frequently included in composite outcomes such as “death or NDI,” which raises significant ethical and scientific concerns. Why Use NDI as a Primary Outcome is Problematic NDI itself is a composite measure, encompassing: This
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Giving a Voice to Parents in Neonatology: Why Their Perspective is Essential When a baby is born prematurely, their parents’ world is turned upside down. They find themselves in a highly specialized medical environment where every heartbeat and breath is closely monitored. But a fundamental question arises: how can we truly assess the well-being and
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Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes Parents’ Voices: Transforming Neonatal Research Through Collaboration Premature birth is a life-altering experience for families, and the uncertainty surrounding the health outcomes of these children can be overwhelming. Projects like Parents’ Voices are making a difference by integrating parental concerns into neonatal research.
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Beyond Diagnoses: video summarizing the voice of parents project In this video, I present the Voice of Parents project with Rebecca Pearce, a great parent partner. Vidéo : LIVE – Parent Voices Project on November 8 at 1 pm EST (duration : 1 hour) Parental Perspectives Matter Being parent in the NICU is difficult, surrounded
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What Sick Babies Can Teach Us About Life and Health My TED Talk describes the lessons that even the tiniest lives can teach us about health, life, function, gratitude, and finding perfection in the most unexpected places. Video : What Babies Can Teach Us About Life and Health | Annie Janvier | TEDxNewRiver (Duration: 18
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Discover the Captivating Episode of “The Incubator” Featuring Dr. Annie Janvier. Podcast Episode
Discover the Captivating Episode of “The Incubator” Featuring Dr. Annie Janvier Read More »
Personalized communication with parents of children born at less than 25 weeks: Moving from doctor-driven to parent-personalized discussions Communicating with parents facing potential preterm birth is complex, especially when the baby may be born before 25 weeks of gestational age. These babies have a high chance of dying or having serious health problems. Many of
NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families The Neonatal Intensive Care Unit (NICU) is a special place with its own language and culture. For doctors and nurses, it’s a place where they pay close attention to every little detail and try to stay hopeful. But for parents, it
