articles and research

Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes

Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes Parents’ Voices: Transforming Neonatal Research Through Collaboration Premature birth is a life-altering experience for families, and the uncertainty surrounding the health outcomes of these children can be overwhelming. Projects like Parents’ Voices are making a difference by integrating parental concerns into neonatal research. […]

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Personalized communication with parents of children born at less than 25 weeks: Moving from doctor-driven to parent-personalized discussions 

Personalized communication with parents of children born at less than 25 weeks: Moving from doctor-driven to parent-personalized discussions  Communicating with parents facing potential preterm birth is complex, especially when the baby may be born before 25 weeks of gestational age. These babies have a high chance of dying or having serious health problems. Many of

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NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families

NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families  The Neonatal Intensive Care Unit (NICU) is a special place with its own language and culture. For doctors and nurses, it’s a place where they pay close attention to every little detail and try to stay hopeful. But for parents, it

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Parental perspectives after very preterm birth: Seeing the good, not just the bad 

Parental perspectives after very preterm birth: Seeing the good, not just the bad  The study aimed to understand how parents see the health and development of their extremely preterm baby (born at less then 29 weeks gestation): their concerns and what they considered positive. We compared this with their babies level of neurodevelopmental impairment (NDI).

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Whole genome sequencing in neonatology: what is it’s value?

Whole genome sequencing in neonatology: what is it’s value? Rapid whole genome sequencing and whole exome sequencing, also known as “next generation sequencing” (NGS), are increasingly recommended as the first test to diagnose infants suspected of having single gene disorders. However, the effectiveness of NGS in diagnosing or managing these conditions varies widely depending on

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Parental evaluate the health of their children and give their perspective on important health outcomes after extremely preterm infants 

Parental evaluate the health of their children and give their perspective on important health outcomes after extremely preterm infants This study looked at how parents of premature babies feel about their children’s health and development. We asked parents of children born extremely preterm (less than 29 weeks of gestational age) to rate their child’s health

Parental evaluate the health of their children and give their perspective on important health outcomes after extremely preterm infants  Read More »

Decision-making for extremely preterm infants with severe hemorrhages on head ultrasound: Science, values, and communication skills

This article, authored by Marie Chevalier (a former fellow of our unit) with Thuy Mai Luu (in neonatal care), Paige Church (a rehabilitation and neonatal care physician), Annie Janvier, and Keith Barrington, reviews the medical literature regarding the outcomes of preterm infants with significant cerebral bleeding and the variations in practices among different teams or countries.

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