articles and research

Supporting Premature Babies: How the F-Words Are Changing Neonatal Care

Supporting Premature Babies: How the F-Words Are Changing Neonatal Care? What if we looked beyond the diagnosis? Supporting premature babies in neonatal intensive care units (NICUs) often centers around risks: brain bleeds, chronic lung disease, developmental delays. But what if we changed the focus? What if, instead of only naming diagnoses, we talked about what […]

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How “Small Wins” in the NICU Help Parents Cope With Their Baby’s Hospitalization

How “Small Wins” in the NICU Help Parents Cope With Their Baby’s Hospitalization? A Breath of Optimism in Neonatal Intensive Care Every year, thousands of parents endure the emotional roller coaster of having a baby in the neonatal intensive care unit (NICU). Amid medical procedures and uncertain prognoses, one crucial element is often missing: optimism.

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The Kidney and Cardiovascular Health of Young Adults Born Prematurely: Insights from the HAPI Study

The Kidney and Cardiovascular Health of Young Adults Born Prematurely: Insights from the HAPI Study I am always impressed by the resilience of premature babies who grow up to become active and healthy young adults. But what about their long-term health? This is an important question, and it is precisely what the HAPI study (Health

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Better Communication with Parents at the End of Life: Concrete Actions for Optimal Support

Better Communication with Parents at the End of Life: Concrete Actions for Optimal Support Pediatric clinicians are urged, when communicating with parents during end-of-life care situations, to be empathetic, warm, and compassionate. These recommendations generally do not include practical suggestions and have little evidence that parents value specific communication techniques. We conducted a study published

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voix des parents

Giving a Voice to Parents in Neonatology: Why Their Perspective is Essential

Giving a Voice to Parents in Neonatology: Why Their Perspective is Essential When a baby is born prematurely, their parents’ world is turned upside down. They find themselves in a highly specialized medical environment where every heartbeat and breath is closely monitored. But a fundamental question arises: how can we truly assess the well-being and

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Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes

Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes Parents’ Voices: Transforming Neonatal Research Through Collaboration Premature birth is a life-altering experience for families, and the uncertainty surrounding the health outcomes of these children can be overwhelming. Projects like Parents’ Voices are making a difference by integrating parental concerns into neonatal research.

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