Discover the Captivating Episode of “The Incubator” Featuring Dr. Annie Janvier.
Dr Annie Janvier is a Professor of pediatrics and clinical ethics at University of Montreal. She is neonatologist and clinical ethicist at the Sainte-Justine University health center. She holds a PhD in Bioethics and co-directs the Masters and PhD programs in clinical ethics at University of Montreal. She works first hand with patients and families confronted with difficult decisions such as end-of-life issues, and decision-making in the face of uncertainty. She is also the parent of three children who had or have healthcare needs, one of which was born at 24 weeks.
Her main research interests in bioethics are decision-making for fragile patients and family integrated care in Pediatrics. She investigates parental perspectives regarding intensive care decisions, death and disability and parent/patient/family important outcomes after an NICU stay.
She has demonstrated many contrasts between provider and parental perspectives and examines how to improve our communication with families. She is author of many narratives, publications and books in clinical ethics and medicine. Patients and parents are collaborators in the majority of her clinical, research and teaching projects.
Find out more about Annie and this episode at: www.nicupodcast.com
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As always, feel free to send us questions, comments or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through instagram or twitter, @nicupodcast. Or contact Ben and Daphna directly via their twitter profiles: @drnicu and @doctordaphnamd. enjoy!
This podcast is proudly sponsored by Chiesi.
As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today’s episode are listed and timestamped on the webpage linked below.
Enjoy!
https://www.the-incubator.org/post/057-dr-annie-janvier-md
Overview of the Discussion with Dr. Annie Janvier.
- Hosts’ Introduction: Neonatologists Dr. Ben Kcha and Dr. D Yova Barau invite listeners to join a new weekly interview.
- Guest of the Episode: Dr. Annie Janvier, a neonatologist specializing in clinical ethics, shares her experiences and research.
- Influential Article: Dr. Janvier’s article “Pepperoni Pizza and Sex” inspired her interest in palliative care. The article highlights the importance of family perspectives in end-of-life care.
- Personal Experiences: Dr. Janvier discusses the premature birth of her daughter, Violette, at 24 weeks, sharing excerpts from her book “Breathe, Baby, Breathe!”.
- Dr. Janvier’s Book: “Breathe, Baby, Breathe!” is based on her experience as a parent in a neonatal intensive care unit. The book addresses the feelings and challenges parents face.
Discussing Parental Guilt:
- The importance of addressing the guilt felt by parents.
- The words and actions of healthcare professionals can influence parental emotions.
- Personalized Communication: Dr. Janvier emphasizes the need to tailor communication to the individual needs of parents to enhance their experience.
- Palliative Care Decisions: Discussion on the importance of involving parents in critical decisions while providing professional recommendations.
Parental Role in Neonatology:
- The importance of allowing parents to participate in the daily care of their baby.
- alancing the provision of medical information with respect for parental preferences.
Gradual Preparation for NICU Discharge:
Parents often face challenges after leaving the hospital, such as planning for childcare.
Book Writing Process:
- The book is written in a diary style, where Dr. Janvier expresses her emotions and reflections in a raw and authentic manner.
- The book combines personal testimonies with academic studies, offering a comprehensive view of the challenges in neonatal and palliative care.