Always a burden? Healthcare providers’ perspectives on moral distress
To explore clinical experiences, perspectives and perceptions of moral distress in neonatology.
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The use and misuse of moral distress in neonatology
The neonatal intensive care unit is recognized as a stressful environment; the nature of caring for sick babies with uncertain outcomes and the need to make difficult decisions results in a work place where moral distress is prevalent. According to the prevailing definition, moral distress occurs when the provider believes that what is “done” is not the right course of action, with an element of constraint: the provider has no choice but to act this way.
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Measuring and communicating meaningful outcomes in neonatology: A family perspective
Medium- and long-term outcomes have been collected and described among survivors of neonatal intensive care units for decades, for a number of purposes: (1) quality control within units, (2) comparisons of outcomes between NICUs, (3) clinical trials (whether an intervention improves outcomes), (4) end-of-life decision-making, (5) to better understand the effects of neonatal conditions and/or interventions on organs and/or long-term health, and finally (6) to better prepare parents for the future.
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Moral distress within neonatal and paediatric intensive care units: a systematic review
To review the literature on moral distress experienced by nursing and medical professionals within neonatal intensive care units (NICUs) and paediatric intensive care units (PICUs).
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Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology
The nature and content of the conversations between the healthcare team and the parents concerning withholding or withdrawing of life-sustaining interventions for neonates vary greatly. These depend upon the status of the infant; for some neonates, death may be imminent, while other infants may be relatively stable, yet with a potential risk for surviving with severe disability.
Moral distress in the neonatal intensive care unit: caregiver’s experience
To determine the frequency with which nurses and residents have experienced ethical confrontations and what factors are associated with increased frequency.
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The ethics of neonatal resuscitation at the margins of viability: informed consent and outcomes.
To determine the adequacy of records of parental counseling in mothers with threatened preterm delivery before 27 weeks gestation, whether interventions performed at birth were consistent with recorded antenatal decisions and whether extent of resuscitation affected the occurrence of serious short-term morbidity.