Dr. Annie Janvier

Gratitude, fragility and strength: Perspectives of adults born preterm about prematurity

Gratitude, fragility and strength: Perspectives of adults born preterm about prematurity Congratulations to Camille, an amazing researcher (and person) who adds another article to her collection of HAPI papers (Health of Adults born Preterm Investigation). Adults born preterm evaluated their health in a balanced fashion. Preterm-born adults often feel that they have experienced positive transformations as […]

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Family Integrated Care: Clinicians and Families’ perspectives

Family Integrated Care: Clinicians and Families’ perspectives This is an article written on behalf of our PAF (partenariat famille) team. “The philosophy of care in Neonatal Intensive care Units (NICU) has changed with increasing integration of families. We examined parents’ and clinicians’ perspective about Family Integrated Care (FiCare) in our quaternary NICU. We found that

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The use and misuse of moral distress in neonatology

The neonatal intensive care unit is recognized as a stressful environment; the nature of caring for sick babies with uncertain outcomes and the need to make difficult decisions results in a work place where moral distress is prevalent. According to the prevailing definition, moral distress occurs when the provider believes that what is “done” is not the right course of action, with an element of constraint: the provider has no choice but to act this way.

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Measuring and communicating meaningful outcomes in neonatology: A family perspective

Medium- and long-term outcomes have been collected and described among survivors of neonatal intensive care units for decades, for a number of purposes: (1) quality control within units, (2) comparisons of outcomes between NICUs, (3) clinical trials (whether an intervention improves outcomes), (4) end-of-life decision-making, (5) to better understand the effects of neonatal conditions and/or interventions on organs and/or long-term health, and finally (6) to better prepare parents for the future.

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