DR. ANNIE JANVIER :
for Families and Clinicians in Neonatology

I’m a doctor in neonatology, a full professor of pediatrics and also the mother of children who have needed the healthcare system (including my daughter, born at 24 weeks). I dedicate my career as a clinician, researcher and teacher to improving the care of fragile babies and their families. Whether you’re a parent, a family member, a clinician looking for advice and support, or a healthcare professional looking for training and medical information to support families, this platform is designed for you.

“Making the decision to have a child – it is momentous. It is to decide forever to have your heart go walking around outside your body.”
-Elizabeth Stone

Who is Dr. Annie Janvier ?

Dr. Annie Janvier is a Professor of pediatrics and clinical ethics at University of Montreal. She is neonatologist and clinical ethicist at the Sainte-Justine University health center. She holds a PhD in Bioethics and co-directs the Masters and PhD programs in clinical ethics at University of Montreal. She works first hand with patients and families confronted with difficult decisions such as end-of-life issues, and decision-making in the face of uncertainty.

Her main research interests in bioethics are decision-making for fragile patients and family integrated care in Pediatrics. She investigates parental perspectives regarding intensive care decisions, death and disability and parent/patient/family important outcomes after an NICU stay.

She has demonstrated many contrasts between provider and parental perspectives and examines how to improve our communication with families. She is author of many narratives, publications and books in clinical ethics and medicine. Patients and parents are collaborators in the majority of her clinical, research and teaching projects.

Discover my book :
Breathe, baby, breathe !

What is it like to be a parent in neonatology ? First of all, as a neonatologist and a mother, I’ve been through the same ordeals as many ICU parents. My book, “Breathe, Baby, Breathe !” shares our story and that of many families, offering valuable support and unique insights. What’s more, this book is an essential resource for parents of sick babies, their families, and healthcare professionals seeking to understand the reality of parenting in the neonatal setting. Together, we can find the strength to overcome even the most difficult challenges.

Advice and encouragement for neonatal parents :

Think of this experience as a marathon, not a sprint.

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Marc

Celebrate every small win and take it one day at a time.

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Julie

Make sure you have good support and remember to see yourself as an individual, not just a parent.

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Sophie

Connect and share with other families. It helps you feel less alone.

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Isabelle

Keep in mind that your baby is in great hands in the neonatal unit.

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David

Hold on to the light at the end of the tunnel! Don’t give up.

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Nadia
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