This is an article written on behalf of our PAF (partenariat famille) team. What do parents do on neonatal units to care for their child? What do they think about family integrated care? How can be optimize FiCare without causing harm?
“The philosophy of care in Neonatal Intensive care Units (NICU) has changed with increasing integration of families. We examined parents’ and clinicians’ perspective about Family Integrated Care (FiCare) in our quaternary NICU.
Dr Annie Janvier
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Families/ParentsProfessionals
Presentation of my book : Breathe, Baby, Breathe!
par Dr Annie JanvierMy name is Annie Janvier, I am a neonatologist, a baby doctor, but also the…
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Covid-19News
Yes, schools should not close, they should be the last ones to close
par Dr Annie JanvierExcellent article, yes, schools should not close, they should be the last ones to close.
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Parenting in the NICU is an intense journey. Parents struggle to build intimacy with their child amid complex emotions and medical uncertainties. They need to rapidly adapt their vision of parenthood to the realities of intensive care.
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Professionals
Providing clarity around ethical discussion: development of a neonatal intervention score
par Dr Annie JanvierTo develop a Neonatal Intervention Score (NIS) to describe the clinical trajectory of a neonate throughout their neonatal intensive care unit (NICU) admission.
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Professionals
Always a burden? Healthcare providers’ perspectives on moral distress
par Dr Annie JanvierTo explore clinical experiences, perspectives and perceptions of moral distress in neonatology.
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The neonatal intensive care unit is recognized as a stressful environment; the nature of caring for sick babies with uncertain outcomes and the need to make difficult decisions results in a work place where moral distress is prevalent. According to the prevailing definition, moral distress occurs when the provider believes that what is “done” is not the right course of action, with an element of constraint: the provider has no choice but to act this way.
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Professionals
Measuring and communicating meaningful outcomes in neonatology: A family perspective
par Dr Annie JanvierMedium- and long-term outcomes have been collected and described among survivors of neonatal intensive care units for decades, for a number of purposes: (1) quality control within units, (2) comparisons of outcomes between NICUs, (3) clinical trials (whether an intervention improves outcomes), (4) end-of-life decision-making, (5) to better understand the effects of neonatal conditions and/or interventions on organs and/or long-term health, and finally (6) to better prepare parents for the future.
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Professionals
Moral distress within neonatal and paediatric intensive care units: a systematic review
par Dr Annie JanvierTo review the literature on moral distress experienced by nursing and medical professionals within neonatal intensive care units (NICUs) and paediatric intensive care units (PICUs).
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Professionals
Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology
par Dr Annie JanvierThe nature and content of the conversations between the healthcare team and the parents concerning withholding or withdrawing of life-sustaining interventions for neonates vary greatly. These depend upon the status of the infant; for some neonates, death may be imminent, while other infants may be relatively stable, yet with a potential risk for surviving with severe disability.